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Help NICE develop guidance on the management of multiple sclerosis in adults

21/01/2020

Help develop the NICE guideline on multiple sclerosis in adults

The National Institute for Health and Care Excellence (NICE) produces guidance on the most effective ways to prevent, diagnose and treat disease and ill health, and provide social care support. Our guidance is based on research evidence and takes into account the views of people working in or using relevant services, and other stakeholder groups.

We are currently looking for patients, unpaid carers and their advocates (usually referred to as ‘lay members’ at NICE) to join the committee developing our guideline onmanagement of multiple sclerosis in adults

I would be very grateful if you could pass on details of this opportunity to your members or networks. You might also be interested in applying yourself or wish to consider encouraging others to apply. See our recruitment advert for details of what working with the committee involves, the kind of experience and knowledge we are looking for, and how to apply. Recruitment is open until 5pm on Monday 17th February.

We would welcome an application from those who have recent experience or knowledge of this topic and are able to reflect the views, experiences and needs of the public to ensure they are included in the development of this guideline. They need to be able to contribute effectively in a formal committee setting. Our lay members are paid a fee to attend meetings and we cover travel and other expenses.

If you consider it appropriate, please also promote this vacancy through social media or other communication channels (a newsletter, for example) at your disposal. The public involvement programme at NICE is on Twitter, and you can follow us @NICEGetInvolved – we would be very grateful if you could retweet our tweet to your followers about this recruitment which we have tweeted today.

We really value the contribution thatpeople who use health and social care services, their carers and advocates make to our guidelines, and would appreciate any help you can give in letting people know about this vacancy.

See the project page on our website for more details about this guideline project, including key dates and relevant documents.

Stakeholder registration and consultation on the guideline’s scope

Also open until 5pm on Monday 17th February is the opportunity for registered stakeholder organisations to comment on the draft scope for the above guideline. The scope sets out what the guideline will and will not cover.  I note that your organisation is not yet registered as a stakeholder and so wanted to make sure that are aware of this opportunity to be involved with developing this particular guideline.

To see the draft scope and register as a stakeholder for this particular guideline, please look at the project webpage.

Registering as a stakeholder does not commit you to attending any meetings or other activity, but it is the only way in which you will be able to make us aware of your views on our draft documents and receive a response. NICE responds to all comments from registered stakeholders, with comments and responses posted on our website when the final version of the document is published.

We would welcome the involvement of your organisation as a stakeholder, and any assistance you might offer in getting word out about the NICE committee recruitment. If you have any queries about getting involved with NICE as a registered stakeholder, please do get in touch – I would be happy to chat further about this or any other aspect of NICE’s work.

 

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